This site is especially meant for parents with children who have laryngeal cleft. We offer documentation, an online community, links and tips about Laryngeal cleft, which you can find easily from our page. read more>>
We hope to provide valuable information about laryngeal cleft and especially to create awareness about this rare anomaly. You can find information and get in contact with parents in similar situations. read more>>
Linked to this site we provide a new online community. You can create a free account at this platform. Just sign up and get started. Exchange experiences and information with other parents about laryngeal cleft! read more>>
Wednesday, June 27th our Diego will have his second surgery.
We are looking forward to this operation for 5 years now. We really hope this will be the last one and that he will finally get better. A long recovery awaits him, but a bright future is his persepctive ...
He finds it very exciting and hopes to receive a lot of mail.
Since he has been talking about it for days now!
The idea of receiving post makes him very happy, his eyes sparkle with every thought about receiving a postcard! ...
As previously stated we are working to give more attention to a rare congenital disorder "Laryngeal Cleft" (also known as laryngeal fissure).
Welcome to Laryngeal Cleft, the European community for parents by parents.
With this site we hope to create more awareness for the rare congenital anomaly of Laryngeal Cleft. Besides that we hope to share experiences and information with other parents and between them. Get in contact with other parents now!
What is laryngeal cleft?
Laryngeal cleft (fissure of the larynx) is a rare abnormality of the separation between the larynx, or voice box, and the esophagus. When the larynx develops normally it is completely separate from the espophagus, so swallowed foods go directly into the stomach. A laryngeal cleft creates an opening between the larynx and the esophagus so food and liquid can pass through the larynx into the lungs.
What are the symptoms of laryngeal cleft?
Laryngeal cleft causes swallowing problems. Coughing, gagging, frequent respiratory infections, and chronic lung disease are also symptoms of the disorder.
How is laryngeal cleft diagnosed?
Laryngeal cleft is diagnosed through a comprehensive aero-digestive evaluation performed under anesthesia.
What is the treatment for laryngeal cleft?
Laryngeal cleft is treated with surgery to close the opening in the larynx. Conventional treatment for the condition is invasive surgery requiring an incision in the neck and opening of the larynx. Surgeons at Children's Hospital Boston were the first in the world to perform robotic surgery on an airway to correct a laryngeal cleft. The robotic equipment allows surgeons to work through the oral cavity and in the restricted confines of the airway without impeding breathing. This minimally-invasive technique results in less pain and scarring and faster recovery. At this time we are constructing this webiste and development will be ongoing. As well as our Laryngeal Cleft Support Group , Laryngeal Cleft Twitter , Laryngeal Cleft Facebook and Laryngeal Cleft Google+ page